Wednesday, July 7, 2010


The World Cup continues. I still obsessively watch, and LOVE it. Of course after Ghana's sad leaving I am no longer invested, and can watch without my usually low blood pressure rising to meteoric heights! I can't analyze the games, and give you an informed commentary, suffice to say, I thoroughly enjoy it, to the exclusion of all else. Hence, no blogs.

However, today again proved to be one of those joyous days related to work. The same kids I described in my May 11th blog, again passed major developmental milestones. The little boy who has Johansen Blizard Syndrome (they are all little, but this one is particularly little, it is part of his rare syndrome) has consistently never stayed in prone (on his stomach) for longer than maybe a nanosecond. When I first received the referral and read the name of the syndrome I imagined finding a freezing Norwegian. Instead he was a very odd looking, teeny low-tone little Mexican with a nose just like the beak of a bird, an odd pattern of hair growth, amongst many other anomalies. At first he screamed if I tried to place him in prone, Later he learned to wriggle out of the position. If he even sensed I may be placing him on his stomach he turned himself around so fast that sometimes he almost slipped out of my grasp. In vain I tried, his parents tried, his physical therapist tried - all to no avail. Tomorrow he turns two years old, and although he does many new things, crawling is not one of them. Today we played with a ball. He sat between my legs and threw the ball to his young cousin who then threw it back to him. If it went astray (nearly every throw) his cousin or his mother would have to crawl under the table or go down the passage way to retrieve it. He wouldn't move, even though he has learned to scoot around on his butt. After a while I placed him on his hands in a wheelbarrow position and lifted his legs. After a few minutes of this I lowered him, stomach down, to the floor, waiting for him to flip, writhe, scream, anything to escape. To my astonishment he remained in prone and began combat crawling. I could not believe it, off he went, along the tiled living room floor into the kitchen. There he turned around and continued down the carpeted passageway toward a bedroom! I stood there dumbstruck (briefly.) His mom said that on Friday he began doing this. What joy and excitement. This bodes very very well for his future development. I could honestly say to his family that he will eventually walk.

Later the mother of the other odd little boy who also has a rare syndrome, 41 xxxxy, of which not much is known, called me to say he is sick, he has been coughing. I asked whether I can come tomorrow and she said, "please, we have something very exciting to show you. He got to his hands and knees the other day and crawled a bit, before collapsing." For the first year of his life he didn't move, at all. He never reached for toys, he never moved. If placed on his stomach he stayed there until moved. When placed on his side, that is where he remained, the same when he was on his back. Eventually he learned to sit without support, and there he remained like a little Buddha. Just recently he has begun smiling and combat crawling, and he even initiated a game of 'peek-a'boo' to my astonishment. And now he is crawling!!!!!!!!!!!

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